After Matt was diagnosed, we got very busy. In a nutshell of 10 steps, here’s what we did before we scheduled surgery:
- Obtained 15+ copies of his MRI report from the hospital
- Told our close friends and family what was going on, started reaching out to find recommendations for surgeons who specialize in chordomas, and did our own research.
- Contacted the insurance company
- Focused on getting Matt as physically healthy as possible to beat this thing and recovery quickly
- Made doctors appointments close to home with the local neurosurgeon and with the primary care physician
- Made doctors appointments with neurosurgeons that specialize in skull base surgery within in driving distance (4-5 hours) from us in bigger cities.
- Mailed our MRI’s out to any other surgeon leads or referrals (especially those too far to travel to) in effort to get more opinions
- Set up phone consults with surgeons who received the MRI’s and others specializing in this field as well as reached out to other patients.
- Came to the agreement that surgery should take place in the next month or two based on similar opinions between all surgeons (this could be different for others)
- Narrowed down our top surgeons, slept on it, and visited the one we liked best to make our final decision.
The next pages will go in to these steps in a little more detail with relation to Matt’s experience.